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In the world of gymnastics, Aly Raisman stands tall for her leadership and athleticism, having captained both the 2012 “Fierce Five” and the 2016 “Final Five” teams for Team USA. With six Olympic medals, she has earned the admiration and respect of fans worldwide as the third most decorated American gymnast in history.

Since her retirement, Raisman has transitioned into a powerful advocate for women in sports, using her voice for causes like mental health awareness, body positivity, self-care, and positive self-talk. Adding to her journey, the new ESPN Gymnastics Analyst recently revealed an endearing collaboration, shedding light on a generational illness that has deeply affected her family.

Aly Raisman reveals an illness that runs in her family

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Taking to Instagram, Aly Raisman joined the Alport Syndrome Foundation (ASF) in honor of World Kidney Day and Alport Awareness Month. In her message, Raisman revealed, “Alport syndrome has affected my family deeply for multiple generations and I’m passionate about raising more awareness for better treatment options.” She also shared how, through her and her family members’ experiences, they have learned the importance of patients’ knowledge and understanding of their condition.

She also emphasizes on the significance of feeling empowered to advocate for themselves. This empowerment can lead to better communication with healthcare providers, improved treatment decisions, and a better overall quality of life for patients. As we reflect on her brave advocacy and leading by example, let’s find out how the Alport Syndrome Foundation aims to make a difference.

The efforts of the Alport Syndrome Foundation

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The Alport Syndrome Foundation (ASF) is a non-profit organization in the United States dedicated to assisting individuals with Alport syndrome, a rare genetic disease that impacts kidney function. The ASF’s mission is to enhance the lives of those affected by the syndrome through education, empowerment, advocacy, and investment in research.

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Offering a range of free resources, such as one-on-one meetings, group sessions, a Facebook support group, educational materials, webinars, videos, and a monthly newsletter, ASF strives to provide comprehensive support to patients. Aly Raisman expressed her appreciation for ASF’s efforts in promoting new research, educational resources, and community support for individuals with Alport syndrome.

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She remarked, “Working together to help these efforts will hopefully help improve and save the lives of patients, friends, and families impacted by Alport syndrome.” As Raisman continues to utilize her platform for impactful advocacy, fans eagerly await the positive contributions she and ASF will continue to make in the Alport community.

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